About This Site

I began this memoir for two reasons. First, I did it for myself. Discussing disability issues has been an interest of mine since college, perhaps before. I enjoy sharing my closest of thoughts with my closest of friends. Though somewhat shy about discussing more personal issues with acquaintances, I found that many parents of children with neuromuscular diseases (and other disabilities) found in me and my brother something they did not always grasp from doctors.

Hope.

These parents found some small bit of comfort in their time of crisis knowing that their children could grow up, live life, and be happy. This, in part, forms the second reason for starting this blog. I believe there are people out there, whether they be parents of disabled children or the children themselves or adults with disabilities, who can relate to my experiences.

So I did it for myself. But I hope I can impart at least some small amount of knowledge and understanding to anyone who decides to join me. Even more, I hope to learn from their experiences as well.